impaired executive function

Most people on the spectrum have some level of executive function impairment, but how that impairment impacts our lives can vary greatly from person to person.
~ Cynthia Kim
(Nerdy, Shy, and Socially Inappropriate)

The most fascinating aspect of autism that I have encountered so far is the idea of impaired executive function. It’s not something that usually gets listed with other features of autism and I had no idea what “executive functioning” could possibly mean.

Executive function is a broad term that refers to the cognitive processes that help us regulate, control, and manage our thoughts and actions. It includes planning, working memory, attention, problem solving, verbal reasoning, inhibition, cognitive flexibility, initiation of actions, and monitoring of actions.
~ Cynthia Kim
(Nerdy, Shy, and Socially Inappropriate)

I have trouble with all these things! I’ve long considered myself to be inept, clumsy, absent-minded and inflexible — to think how long I’ve desperately tried to force myself to be flexible and easy-going. Even my children tried not to spring things on me, not wanting mom to get hopelessly flustered.

It’s difficult for me to finish a chore if it has too many steps. Sometimes I have to write down each and every step if I want to have any hope of getting the job done. Lists are my friends, I think.

Driving is overwhelming because there are too many things going on to pay attention to. I use my left foot for the brake because the right foot is for the gas pedal. One foot can’t seem to handle two different assignments. When I finally got my driver’s license at the age of 21 the person who tested me decided to pass me if I promised to work on using the one foot for both pedals. He said if I used both feet I would get mixed up and push the wrong pedal sometimes. Now I am glad I didn’t listen to him because I have never gotten the pedals mixed up doing it my way. Now I know why — my brain works a little differently.

I also have many difficulties with problem solving. Often it just doesn’t occur to me that doing something a bit differently would be faster or more effective. And very often I don’t even recognize a problem until someone points it out to me. (I do appreciate the helpful hints, by the way, humble being that I am.) And sometimes when trying to do something familiar in a new setting or at a different time or with different people I simply freeze. In fact freeze is my automatic response when faced with the anxiety of a fight-flight-freeze situation.

When I was a child we often went to visit my widowed aunt who needed my parents’ help with home maintenance and yard work. She always had a stack of gift catalogs — like Harriet Carter, Lillian Vernon, Carol Wright, Miles Kimball — but I called them problem-solving catalogs. My parents never had these fascinating resources! While Auntie was cooking a Sunday dinner I used to study them carefully, amazed at all the clever gadgets people invented to solve problems I never imagined existed!

Something more recent now… I have two tall bookcases with glass doors that I need to move to finish painting the living/dining room. I wanted someone to help me by standing on the floor while I stood on a chair and emptied the top shelf, handing them the items to put on the table. I wanted to do it this way because I didn’t want to have to keep getting up on and down off the chair. That’s pretty much how I always tackled the problem but when I was younger there was always a child available to help me out.

Then one night about a week ago I was sitting on the couch looking at them and it suddenly occurred to me that I could take things off a lower shelf and then move the things off the top shelf onto the lower shelf while still standing on the chair. I was amazed at my sudden and unfamiliar brilliance! Why didn’t I think of this years ago?

What is unusual here is that I figured this one out by myself. To do things my way is usually tedious at best. Most of the shortcuts I’ve learned over the years for doing housework have come from how-to books or from friends and relatives pointing things out to me. I still remember how enlightened I felt when my aunt told me about felt circles I could stick to the bottom of the kitchen chairs to muffle the loud noise they made when moved across the floor. Who knew?

Frustratingly, an executive function deficit is not something you can fix by simply trying harder. Often, other people will look at the symptoms of impaired executive function and assume the autistic person is lazy, spaced out, or disorganized. If only they would make more effort, everything could be fixed. In fact, I think most autistic people — including me — think this of themselves at times.
~ Cynthia Kim
(Nerdy, Shy, and Socially Inappropriate)

doubt

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5.15.15 ~ gull at Piazza San Marco, Venice, Italy

What we overlook is that underneath the ground of our beliefs, opinions, and concepts is a boundless sea of uncertainty. The concepts we cling to are like tiny boats tossed about in the middle of a vast ocean. We stand on our beliefs and ideas thinking they’re solid, but in fact, they (and we) are on shifting seas. Any ideas or beliefs we hold in our minds are necessarily set against other ideas and beliefs. Thus we cannot help but experience doubt.
~ Steve Hagen
(Buddhism: Plain & Simple)

Herring Cove Beach

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Herring Cove Beach ~ 10.11.15 ~ Provincetown, Massachusetts

One morning in Provincetown we drove out to Herring Cove Beach, where we used to spend days at the beach when the kids were small. The waves here on the bay side are more gentle than they are on the beaches facing the open Atlantic. When they got older they preferred the excitement of Race Point Beach. This beach is pretty rocky, lots of small stones, making trips in and out of the water rough on tiny feet.

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Herring Cove Beach ~ 10.11.15 ~ Provincetown, Massachusetts

For whatever we lose (like a you or a me)
it’s always ourselves we find in the sea
~ E. E. Cummings
(The Lyric Self in Zen & E. E. Cummings)

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Herring Cove Beach ~ 10.11.15 ~ Provincetown, Massachusetts

It was fun photographing the gulls sunning themselves in a different background than the large rocks they usually perch on at our local beach. The future is always uncertain, but lately possible scenarios seem to be monopolizing my thoughts, creating anxiety even as I try to stay living in the present. Spending so much time on the Cape has helped me restore a sense of peace with things as they are or will prove to be. It’s not so much a feeling of resignation, but more of an accepting of the inevitable flux and flow of life.

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Herring Cove Beach ~ 10.11.15 ~ Provincetown, Massachusetts

When anxious, uneasy and bad thoughts come, I go to the sea, and the sea drowns them out with its great wide sounds, cleanses me with its noise and imposes a rhythm upon everything in me that is bewildered and confused.
~ Rainer Maria Rilke
(Letter to Clara Rilke, March 27, 1903)

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Herring Cove Beach ~ 10.11.15 ~ Provincetown, Massachusetts

slipping into the sea

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before sunrise from our balcony ~ 10.12.15 ~ Dennis Port, Massachusetts

An incurable early bird, on the last morning of our little weekend getaway I found myself unable to sleep and so decided to get up and read and gaze out of the sliding glass doors of our room at the Sea Shell Motel in Dennis Port on Cape Cod. It was about 40 minutes before sunrise and there was an intense yellow orange glow on the horizon.

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walking over the dune ~ 10.12.15 ~ Dennis Port, Massachusetts

As sunrise approached I decided to bundle up in my coat and my new Norwegian wool hat with ear flaps and walk down to the windy beach to take some pictures and enjoy some early morning solitude. It was the best moment of the day.

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sunrise on the beach ~ 10.12.15 ~ Dennis Port, Massachusetts

Thoughts turned to beloved grandparents who lived in Dennis Port, just up the street. When I was little we stayed with them at their house but sometime in the late 1980s, when my own children were little, my grandmother’s health problems became such that staying in a motel nearby became necessary. There’s no way to count the times we have stayed at the Sea Shell in the past 30 years or so. Each room is unique and charming, well-worn but clean and comfortable. No frills, just a short wooden walkway over the dune to the beach, the sounds of waves breaking close by.

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the sun keeps rising ~ 10.12.15 ~ Dennis Port, Massachusetts

I wanted to come here for old times’ sake. So often on this recent trip nature would vividly illustrate the simple truth that nothing is solid in the boundless flow of time and place, there is nothing to grasp. It was here that my grandparents embraced me with abiding wisdom and persisting love. But now they are long gone, even though I feel their presence still. The waves break on the sand and disappear and yet are still there, like the voices of my small curious children. Cape Cod is slipping into the sea.

so old, so alone

10.12.14 ~ Durham, North Carolina
dawn redwood ~ 10.12.14
Sarah P. Duke Gardens, Durham, North Carolina

The tree was so old, and stood there so alone, that his childish heart had been filled with compassion; if no one else on the farm gave it a thought, he would at least do his best to, even though he suspected that his child’s words and child’s deeds didn’t make much difference. It had stood there before he was born, and would be standing there after he was dead, but perhaps, even so, it was pleased that he stroked its bark every time he passed, and sometimes, when he was sure he wasn’t observed, even pressed his cheek against it.
~ Karl Ove Knausgård
(A Time for Everything)

Fossils show that Dawn Redwood (Metasequoin glyptostroboides) was a dominant coniferous tree in much of the Northern hemisphere from about 90 to 15 million years ago. In 1941 a few living trees were surprisingly discovered in a remote part of western China. Seeds collected from them were germinated at the Arnold Arboretum of Harvard University in 1948. The next year this tree, one of the original seedlings, was planted here in Durham, North Carolina at the Sarah P. Duke Gardens at Duke University.

a long fine life

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9.7.15 ~ Eastern Point Beach

Of course no evening at the beach would be complete without a visit from our old friend with the mangled leg and foot. The gull may just be greeting us in a friendly manner, but his call is so mournful and long we often wonder what tale of woe he is trying to share. The burdened gull looks in a lot better shape now than he did at the beginning of the summer.

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9.7.15 ~ Eastern Point Beach

I’ve learned not to feel too sorry for this gull. He doesn’t seem to feel sorry for himself. His large strong wings work perfectly well and we see him flying and fishing out over the rocks and the water. And every summer he’s an expert at swooping down and snatching hot dogs from unsuspecting diners at the picnic tables. I once saw him swallow a foot-long hot dog, whole, in one big gulp! Human food is not good for gulls and most people, including us, obey the rules not to feed them. At least not on purpose. 🙂

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9.7.15 ~ Eastern Point Beach

We learned that we are not this old gull’s only friends. While a group of three off-duty lifeguards were walking along, chatting and gathering up their equipment for the last time this summer, he flew over and landed on a picnic table right in front of them and squawked at them. They all said hello and spoke to him and then finally one said, as the gull flew off, “Good-bye, Claws! Please don’t die!”

So Tim & I are not the only ones who wonder at the end of each summer if this wounded gull will make it through the coming winter. Since I first met this gull in 2011, he must be at least four years old, probably more. Gulls live ten to fifteen years so it is possible he may be around for many summers to come.

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9.7.15 ~ Eastern Point Beach

Jonathan Seagull discovered that boredom and fear and anger are the reasons that a gull’s life is so short, and with these gone from his thought, he lived a long fine life indeed.
~ Richard Bach
(Jonathan Livingston Seagull)

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9.7.15 ~ Eastern Point Beach

photos by Tim Rodgers

summer solstice

"Ukrainian Landscape" by Efim Volkov
“Ukrainian Landscape” by Efim Volkov

There came a Day – at Summer’s full –
Entirely for me –
I thought that such – were for the Saints –
Where Resurrections – be –

The Sun – as common – went abroad –
The Flowers – accustomed – blew –
As if no Soul the Solstice passed –
That maketh all things new.

~ Emily Dickinson
(The Poems of Emily Dickinson, #325)

here/now

PierreAugusteRenoir.umbrellas
“Umbrellas” by Pierre-Auguste Renoir

The Drop, that wrestles in the Sea –
Forgets her own locality
As I, in Thee –

She knows herself an incense small –
Yet small, she sighs, if all, is all,
How larger – be?

The Ocean, smiles at her conceit –
But she, forgetting Amphitrite –
Pleads “Me”?

~ Emily Dickinson
(The Poems of Emily Dickinson, #255)


I’m saying open up
And let the rain come pouring in
Wash out this tired notion
That the best is yet to come
But while you’re dancing on the ground
Don’t think of when you’re gone
~ Dave Matthews
♫ (Pig) ♫