transformation listens for what life itself wants

“Julie Daydreaming” by Berthe Morisot

Self-improvement is rigid and perfectionistic, driven by beliefs, expectations and old answers, while genuine transformation is flexible, open to new discoveries and rooted in not-knowing. Genuine transformation listens for what life itself wants, while self-improvement imagines that “I” know how everything “should” be. Self-improvement is judgmental, self-righteous and narrow-minded, while happiness and real change are the release of all that.
~ Joan Tollifson
(Death: The End of Self-Improvement)

It was probably inevitable, but we have just learned we now have a positive COVID-19 case in our condo complex. The news sent a chill down my spine. No doubt Dr. Fauci is right, we best prepare to hunker down for the fall and winter.

relentlessly unpredictable

Not all the features of atypical human operating systems are bugs. By autistic standards, the “normal” brain is easily distractible, is obsessively social, and suffers from a deficit of attention to detail and routine. Thus people on the spectrum experience the neurotypical world as relentlessly unpredictable and chaotic, perpetually turned up too loud, and full of people who have little respect for personal space.
~ Steve Silberman
(NeuroTribes: The Legacy of Autism & The Future of Neurodiversity)

A major source of anxiety for me is any sudden change of plans. Over the years I’ve learned from observation that other people don’t see these as the catastrophes I experience and have at times concluded that there is something terribly wrong with me. Or then I think something is wrong with others, that they’re rude not to stick to a plan. I’ve spent countless hours giving myself pep talks about learning to be flexible and learning to go with the flow. When a change of plans pops into my day I have a hard time telling if it is a reasonable response to an unanticipated development or if it is just someone else’s whim. It doesn’t matter. Either way, I force myself to accept the change and exhaust myself repressing the panic I feel, trying to be “normal.”

[Lewis] Carroll’s transitions from chapter to chapter are abrupt and unexpected. Alice is rushed from one scene to the next without any opportunity to stop and process what she has just experienced, or to prepare herself mentally for what’s to come. This kind of abrupt time change, without transition, is similar to how a day at school feels to a child with AS. There is no flashback, no foreshadowing: since there is only the immediate moment, shifts in time and place are disconcerting and stressful. Carroll captures this feeling of urgency and panic very well.
~ Julie Brown
(Writers on the Spectrum: How Autism & Asperger’s Syndrome Have Influenced Literary Writing)

“Alice Meets the White Rabbit” by Margaret Winifred Tarrant

I have a very poor sense of time and an “unreasonable” fear of being late. When I know I have an appointment I rush around checking the clock all day, much like the White Rabbit in Alice in Wonderland, and cannot manage to do anything else. It seems like such a waste of time, but I cannot help it. Inevitably I leave the house too early. I watch in wonder and awe as others effortlessly multi-task and juggle appointments and chores in the course of a day. But to me it’s too overwhelming and confusing!

When surprised by the doorbell or the phone ringing I experience an adrenaline rush. I’ve worked hard over the years to not startle or gasp when that happens. Similarly, it is difficult to keep myself together when hearing a horn or a siren while out driving. On the other hand, I love the soothing sounds of foghorns and buoy bells, one of the comforts of living by the sea.

It’s interesting to me that I accept other sorts of change with far more grace, the change of seasons, the stages of life, evolution, or lifestyle changes. Knowing that nothing stays the same or lasts forever makes it easy for me to do things like let go of clutter or keepsakes and accept that children grow up and move away. Perhaps because these changes are more predictable and expected.

impaired executive function

Most people on the spectrum have some level of executive function impairment, but how that impairment impacts our lives can vary greatly from person to person.
~ Cynthia Kim
(Nerdy, Shy, and Socially Inappropriate)

The most fascinating aspect of autism that I have encountered so far is the idea of impaired executive function. It’s not something that usually gets listed with other features of autism and I had no idea what “executive functioning” could possibly mean.

Executive function is a broad term that refers to the cognitive processes that help us regulate, control, and manage our thoughts and actions. It includes planning, working memory, attention, problem solving, verbal reasoning, inhibition, cognitive flexibility, initiation of actions, and monitoring of actions.
~ Cynthia Kim
(Nerdy, Shy, and Socially Inappropriate)

I have trouble with all these things! I’ve long considered myself to be inept, clumsy, absent-minded and inflexible — to think how long I’ve desperately tried to force myself to be flexible and easy-going. Even my children tried not to spring things on me, not wanting mom to get hopelessly flustered.

It’s difficult for me to finish a chore if it has too many steps. Sometimes I have to write down each and every step if I want to have any hope of getting the job done. Lists are my friends, I think.

Driving is overwhelming because there are too many things going on to pay attention to. I use my left foot for the brake because the right foot is for the gas pedal. One foot can’t seem to handle two different assignments. When I finally got my driver’s license at the age of 21 the person who tested me decided to pass me if I promised to work on using the one foot for both pedals. He said if I used both feet I would get mixed up and push the wrong pedal sometimes. Now I am glad I didn’t listen to him because I have never gotten the pedals mixed up doing it my way. Now I know why — my brain works a little differently.

I also have many difficulties with problem solving. Often it just doesn’t occur to me that doing something a bit differently would be faster or more effective. And very often I don’t even recognize a problem until someone points it out to me. (I do appreciate the helpful hints, by the way, humble being that I am.) And sometimes when trying to do something familiar in a new setting or at a different time or with different people I simply freeze. In fact freeze is my automatic response when faced with the anxiety of a fight-flight-freeze situation.

When I was a child we often went to visit my widowed aunt who needed my parents’ help with home maintenance and yard work. She always had a stack of gift catalogs — like Harriet Carter, Lillian Vernon, Carol Wright, Miles Kimball — but I called them problem-solving catalogs. My parents never had these fascinating resources! While Auntie was cooking a Sunday dinner I used to study them carefully, amazed at all the clever gadgets people invented to solve problems I never imagined existed!

Something more recent now… I have two tall bookcases with glass doors that I need to move to finish painting the living/dining room. I wanted someone to help me by standing on the floor while I stood on a chair and emptied the top shelf, handing them the items to put on the table. I wanted to do it this way because I didn’t want to have to keep getting up on and down off the chair. That’s pretty much how I always tackled the problem but when I was younger there was always a child available to help me out.

Then one night about a week ago I was sitting on the couch looking at them and it suddenly occurred to me that I could take things off a lower shelf and then move the things off the top shelf onto the lower shelf while still standing on the chair. I was amazed at my sudden and unfamiliar brilliance! Why didn’t I think of this years ago?

What is unusual here is that I figured this one out by myself. To do things my way is usually tedious at best. Most of the shortcuts I’ve learned over the years for doing housework have come from how-to books or from friends and relatives pointing things out to me. I still remember how enlightened I felt when my aunt told me about felt circles I could stick to the bottom of the kitchen chairs to muffle the loud noise they made when moved across the floor. Who knew?

Frustratingly, an executive function deficit is not something you can fix by simply trying harder. Often, other people will look at the symptoms of impaired executive function and assume the autistic person is lazy, spaced out, or disorganized. If only they would make more effort, everything could be fixed. In fact, I think most autistic people — including me — think this of themselves at times.
~ Cynthia Kim
(Nerdy, Shy, and Socially Inappropriate)

human inventions

“The Reader (Young Woman Reading a Book)” by Pierre-Auguste Renoir (1841–1919) French Impressionist Painter
“The Reader (Young Woman Reading a Book)”
by Pierre-Auguste Renoir

What an astonishing thing a book is. It’s a flat object made from a tree with flexible parts on which are imprinted lots of funny dark squiggles. But one glance at it and you’re inside the mind of another person, maybe somebody dead for thousands of years. Across the millennia, an author is speaking clearly and silently inside your head, directly to you. Writing is perhaps the greatest of human inventions, binding together people who never knew each other, citizens of distant epochs. Books break the shackles of time. A book is proof that humans are capable of working magic.
~ Carl Sagan
(Cosmos: The Persistence of Memory)