endometrial cancer ~ workforce reduction

12.16.17 ~ Katherine and Dima in Ireland ~ photo by Larisa

So, we’ve had a couple of nasty surprises in the past few weeks.

It turned out that my uterus was not only full of pre-cancerous cells, but also was harboring endometrial cancer that had spread more than 50% into the myometrium layer. So while I was still under anesthesia the surgeon took some lymph nodes to be examined to determine if the cancer had spread any farther. We had to wait two weeks for the lab results. Thankfully the lymph nodes were negative. Good news. Hopefully all the cancer has been safely removed but I will have to have two weeks of radiation in January out of an abundance of caution. Meanwhile I have three and a half more weeks to heal from the surgery. I’m not allowed to lift anything over 5 lbs. but have begun puttering around the house between long naps.

My sister-in-law came for the first two weeks and took very good care of me and cooked all of our meals. Tim’s brother came after the first week ~ it was fun having both of them around and helped the waiting-for-lab-results time to pass more quickly. Thank you, Dan & Fran!!!

They say when it rains, it pours. Well, Friday was Tim’s last day of work. “Workforce reduction” to use corporate-speak. What a “thoughtful” Christmas gift…

Time for another nap. I understand fatigue is par for the course, all energy going to healing. But I wanted to let my readers know how I am doing. Hope to be back visiting blogs soon. Steady as we go.

a new visitor

7.24.17 ~ house finch by Timothy Rodgers

Yesterday afternoon a flash of bright red in the arborvitae trees behind our condo caught my eye. This little fellow was feasting away on the tree’s seeds, off and on, all afternoon. When Tim got home he decided to take some pictures through the sliding glass doors. My Facebook friends helped me to identify him.

7.24.17 ~ house finch by Timothy Rodgers

I know most people don’t feel the same way, but the weather yesterday was wonderful! The temperatures were about 20 degrees below normal and we got a good soaking rain. It felt like October! What a pleasant respite from the heat of summer ~ no hum from the air conditioner and a visit from this sweet little bird.

impaired executive function

Most people on the spectrum have some level of executive function impairment, but how that impairment impacts our lives can vary greatly from person to person.
~ Cynthia Kim
(Nerdy, Shy, and Socially Inappropriate)

The most fascinating aspect of autism that I have encountered so far is the idea of impaired executive function. It’s not something that usually gets listed with other features of autism and I had no idea what “executive functioning” could possibly mean.

Executive function is a broad term that refers to the cognitive processes that help us regulate, control, and manage our thoughts and actions. It includes planning, working memory, attention, problem solving, verbal reasoning, inhibition, cognitive flexibility, initiation of actions, and monitoring of actions.
~ Cynthia Kim
(Nerdy, Shy, and Socially Inappropriate)

I have trouble with all these things! I’ve long considered myself to be inept, clumsy, absent-minded and inflexible — to think how long I’ve desperately tried to force myself to be flexible and easy-going. Even my children tried not to spring things on me, not wanting mom to get hopelessly flustered.

It’s difficult for me to finish a chore if it has too many steps. Sometimes I have to write down each and every step if I want to have any hope of getting the job done. Lists are my friends, I think.

Driving is overwhelming because there are too many things going on to pay attention to. I use my left foot for the brake because the right foot is for the gas pedal. One foot can’t seem to handle two different assignments. When I finally got my driver’s license at the age of 21 the person who tested me decided to pass me if I promised to work on using the one foot for both pedals. He said if I used both feet I would get mixed up and push the wrong pedal sometimes. Now I am glad I didn’t listen to him because I have never gotten the pedals mixed up doing it my way. Now I know why — my brain works a little differently.

I also have many difficulties with problem solving. Often it just doesn’t occur to me that doing something a bit differently would be faster or more effective. And very often I don’t even recognize a problem until someone points it out to me. (I do appreciate the helpful hints, by the way, humble being that I am.) And sometimes when trying to do something familiar in a new setting or at a different time or with different people I simply freeze. In fact freeze is my automatic response when faced with the anxiety of a fight-flight-freeze situation.

When I was a child we often went to visit my widowed aunt who needed my parents’ help with home maintenance and yard work. She always had a stack of gift catalogs — like Harriet Carter, Lillian Vernon, Carol Wright, Miles Kimball — but I called them problem-solving catalogs. My parents never had these fascinating resources! While Auntie was cooking a Sunday dinner I used to study them carefully, amazed at all the clever gadgets people invented to solve problems I never imagined existed!

Something more recent now… I have two tall bookcases with glass doors that I need to move to finish painting the living/dining room. I wanted someone to help me by standing on the floor while I stood on a chair and emptied the top shelf, handing them the items to put on the table. I wanted to do it this way because I didn’t want to have to keep getting up on and down off the chair. That’s pretty much how I always tackled the problem but when I was younger there was always a child available to help me out.

Then one night about a week ago I was sitting on the couch looking at them and it suddenly occurred to me that I could take things off a lower shelf and then move the things off the top shelf onto the lower shelf while still standing on the chair. I was amazed at my sudden and unfamiliar brilliance! Why didn’t I think of this years ago?

What is unusual here is that I figured this one out by myself. To do things my way is usually tedious at best. Most of the shortcuts I’ve learned over the years for doing housework have come from how-to books or from friends and relatives pointing things out to me. I still remember how enlightened I felt when my aunt told me about felt circles I could stick to the bottom of the kitchen chairs to muffle the loud noise they made when moved across the floor. Who knew?

Frustratingly, an executive function deficit is not something you can fix by simply trying harder. Often, other people will look at the symptoms of impaired executive function and assume the autistic person is lazy, spaced out, or disorganized. If only they would make more effort, everything could be fixed. In fact, I think most autistic people — including me — think this of themselves at times.
~ Cynthia Kim
(Nerdy, Shy, and Socially Inappropriate)

wishing for snow

2.22.15 ~ two years ago… Groton, Connecticut

It’s been three weeks (and two days) since Tim’s surgery and healing is coming along nicely, slowly and steadily, without any of the possible complications making an appearance. Visiting nurses continue to come three times a week to take measurements and change the wound dressing. Since we were told to expect a four to six week recovery time it looks like everything is going very well. Tim is comfortable in his recliner.

Sadly, while Tim was in the hospital his uncle died and then a couple of days after he got home his sister-in-law died. So many things at once…

We’ve only had one big snowstorm this January (the day after surgery so I couldn’t visit Tim that day) so I’m still waiting patiently for some snow. As long as it doesn’t come on a day when we are scheduled to visit the surgeon for follow-up appointments! The weather report indicates this spring-like weather pattern will give way to a more natural and snowy February. I do hope so!

surgery update

5.16.15 ~ Venice, Italy

Just a quick update: Tim came home from the hospital yesterday and this morning we are waiting for his first visiting nurse to arrive. He is comfortable on Tylenol and starting to resume a normal diet.

The laparoscopic surgery did not go quite as planned. After an hour the surgeon decided to open him up go in the traditional way. So Tim was in surgery for six long hours. Thankfully my sister was waiting with me.

The surgeon said Tim will likely never have a bout of diverticulitis again!

He will have a huge (10 inches) scar across his lower left abdomen. It joins the huge scar from by-pass surgery (2007) down the middle of his chest. Battle scars… And we’ve been introduced to the concept of healing from the inside out. While his incision is held together with staples on either end, in the middle (4 inches) it remains a gaping open wound.

When a wound is deep … packing the wound can help it heal. The packing material absorbs any drainage from the wound, which helps the tissues heal from the inside out. Without the packing, the wound might close at the top, without healing at the deeper areas of the wound.
~ The American Association for the Surgery of Trauma

On the advice of the occupational therapist I went out and bought a recliner to make Tim more comfortable as he recovers for the next month or so. He’s walking around and doing the stairs, but in between moving around he needs a cozy place to rest. Hopefully the worst of it is behind us now.

sunshine on a rainy day

1.31.16 ~ Essex, Connecticut

It’s been a long while since I’ve posted much of anything besides quotes and paintings. That’s mainly my way of coping with stress, distracting myself with beautiful images and wise words.

Tim has been ill with recurring bouts of diverticulitis for several years now, getting more frequent and more severe this fall, and so the decision has finally been made to proceed with surgery, a sigmoid colon resection. Friday. My sister is coming to stay with me and sit with me during the operation. Larisa and Katie will be coming up after Tim gets home from the hospital. Recovery time is expected to be 4-6 weeks.

1.31.16 ~ Essex, Connecticut

We had our basement renovated this fall. I’m thrilled with the results — we now have heat in the guest room and the powder room and two new closets for storage and updated lighting and electrical outlets and fresh paint on the walls. But being the way I am it was stressful for me having noisy workmen in and out of the house at unpredictable times. I had to give myself a pep talk every morning for several weeks to keep my wits about me. But it was worth it in the end.

My aunt Lil died on October 27. She was 101 years old. I still have unresolved and complicated feelings about our relationship. She had a hard life, becoming a widow at an early age and then losing both her sons, one in a car accident at the age of 29 and the other from a fatal heart attack at the age of 48. Perhaps understandably, she became a very bitter person, and I had sympathy for her at times but it was so difficult spending time with her.

1.31.16 ~ Essex, Connecticut

And then there is the dark cloud hanging over our country now…

But…

1.1.17 ~ Larisa and Katherine enjoy taking selfies for the grandparents, even on rainy days. They’re coming to visit soon!

I am full of gratitude to be living so close to many places where I can go and find grounding and healing in the natural world. And when I cannot get outside I hear the song birds singing, the gulls calling, the Canada geese honking — I love that sound — and enjoy the lovely water-reflected light that flows indoors.

There are many blessings we continue to enjoy, including our darling granddaughter. We’re looking forward to having her puttering around the house while Tim is recovering. Like her mother, our amazing daughter, she is a sweet ray of sunshine, even on a rainy day. 🙂

And our wonderful son, the computer wizard, who lovingly keeps things running smoothly here on my blog. I couldn’t maintain a presence here without him funding and watching over the many things that I fail to understand in the technical world. We had to cancel a January trip to Georgia to see him and his family, because of the surgery, but will reschedule as soon as possible. 🙂

I am surrounded with love and present moment awareness. Life is here/now.

a single evergreen sapling

helga_ancher_-_i_juledagene-_1919
“Helga Ancher Sitting by the Christmas Tree”
by Anna Ancher

Even though the use of evergreens dates back to the Greeks and Romans, the use of the holiday tree is said to have originated in the eighth century Germany. Legend has it that the Christian St. Boniface was trying to convert a group of Druids. Try as he might, though, he couldn’t convince them that the oak tree was neither sacred nor invincible. In desperation, he finally cut one down. When the tree fell, it crushed everything in its path but a single evergreen sapling. Boniface declared it a miracle, then proclaimed that the fir tree belonged to the Christ-child. After that, trees were brought into homes as holiday decorations. It wasn’t until the sixteenth century, however, that the Germans thought to decorate the branches. Some historians say that the first ornaments — fruit, nuts, and cookies — were used as offerings to thank the spirit of the tree.
~ Dorothy Morrison
(Yule: A Celebration of Light & Warmth)