throwback thursday

5.29.16 ~ Virtu Art Festival
Wilcox Park, Westerly, Rhode Island

Every day my cell phone sends me a random selection of pictures it has taken in the past. When this whimsical photo of a lion popped up I wondered where on earth it came from! Turns out it was taken nine years ago at an art festival we used to love to go to, even though I honestly don’t remember this particular piece.

Some people have a way of arranging everything about them, so the objects take on not only their own meaning, and a relation to the other things displayed with them, but something more besides — an indefinable aura that belongs as much to their invisible owner as to the objects themselves.
~ Diana Gabaldon
(Voyager)

I am one of those people who carefully curates all the meaningful objects I’ve collected over the years. And a good many of these mementos have come from artists with booths at the Virtu Art Festival in Westerly, Rhode Island. A close up photograph of a barred owl on a snowy evergreen, infused onto a sheet of aluminum… A uniquely shaped turned wood vase with a tall spire-shaped lid… A glazed earthenware pot with a little bunny head on the rim on one side, and a little bunched-up bunny tail on the other side… I didn’t buy every year we went, but if I fell in love with something I was more than willing to break the budget to bring it home.

I do miss those days! All my most precious keepsakes survived the drastic downsizing we did to move down here, and they have been arranged anew, still, perhaps going forward it’s a good thing that I’ll no longer be tempted to add even more “objects” to my home.

on the quality of life

🍂

Given the ease with which health infuses life with meaning and purpose, it is shocking how swiftly illness steals away those certainties. It was all I could do to get through each moment, and each moment felt like an endless hour, yet days slipped silently past. Time unused and only endured still vanishes, as if time itself is starving, and each day is swallowed whole, leaving no crumbs, no memory, no trace at all.
~ Elisabeth Tova Bailey
(The Sound of a Wild Snail Eating)

It’s hard to believe it’s been five years since I received my radiation proctitis diagnosis on January 3, 2020. It’s been a difficult journey, learning how to live with a chronic illness. I feel like Sisyphus, continually pushing a boulder up a hill, with no reasonable hope for relief.

I’ve learned that radiation proctitis is called pelvic radiation disease by the medical system in the United Kingdom, a much more comprehensive description than we have here in the United States.

In the last few decades radiotherapy was established as one of the best and most widely used treatment modalities for certain tumours. Unfortunately that came with a price. As more people with cancer survive longer an ever increasing number of patients are living with the complications of radiotherapy and have become, in certain cases, difficult to manage. Pelvic radiation disease (PRD) can result from ionising radiation-induced damage to surrounding non-cancerous tissues resulting in disruption of normal physiological functions and symptoms such as diarrhoea, tenesmus, incontinence and rectal bleeding. The burden of PRD-related symptoms, which impact on a patient’s quality of life, has been under appreciated and sub-optimally managed.
~ Kirsten AL Morris & Najib Y Haboubi
(World Journal of Gastrointestinal Surgery, November 27, 2015, “Pelvic radiation therapy: Between delight and disaster”)

Quality of life — how on earth can it be measured?

The necessary low fiber, low fodmap diet is terribly restrictive and makes eating with others and/or eating out in restaurants very awkward. I need to bring my own food.

The unpredictable and painful flare-ups of symptoms keeps me from making too many plans and the plans I do make need to be tentative. It’s frustrating, but the alternative is to never go out and do anything.

In my darkest moments I feel like this steep price paid for cheating death is not worth it.


The Heart asks Pleasure — first —
And then — excuse from Pain —
And then — those little Anodynes
That deaden suffering —

And then — to go to sleep —
And then — if it should be
The will of it’s Inquisitor
The privilege to die —

~ Emily Dickinson
(The Poems of Emily Dickinson, #588)


Coping mechanisms — there are quite a few…

Gathering information and helpful tips from my sympathetic gastroenterologists (both in Connecticut and North Carolina) — I’ve been lucky with that. (On the other hand, the radiologist and oncologist who dished out the radiotherapy were shockingly unsympathetic about the iatrogenic disease this cancer treatment caused.)

Finding the Pelvic Radiation Disease & Radiation Colitis support group on Facebook. It’s validating to know others who understand what it feels like to be living with this.

Working on my original 2020 goal “to take a walk in the woods.” Spending time with nature and capturing its wonders with my camera is very healing.

Reducing stress by practicing yoga, reading poetry and books, and listening to music. (I’m so grateful for the beautiful Chapel Hill Public Library and for my playlists on Spotify!)

Distraction = long hours of family history research.

Learning to say “no” (and trying not to feel guilty about it) when I need to rest and recuperate.

What a long strange trip it’s been these last five years, running concurrently with the pandemic in the beginning, and complicating our move to North Carolina. Most of all, I’m grateful for my husband. Tim lends a patient and supportive listening ear, bearing witness to my pain and struggle. I honestly don’t know how I would have gotten this far without him!

🍂

sunlight in the forest

If you had told me a year ago when I was writing my last Walktober post in Connecticut that a year later I would be writing my next one from a new home far away in North Carolina….. I would not have thought it even remotely possible. But here I am!

This is my contribution to Walktober, this year being hosted by Dawn over at her Change Is Hard blog. See Dawn’s warm invitation to participate here: Walktober 2023.

10.25.23 ~ Carolina North Forest
Chapel Hill & Carrboro, North Carolina

It turns out that 750 acres of woodlands, with numerous trails, belonging to the University of North Carolina, is only about a mile away from our home, as the crow flies. For this, our first visit, we wound up on the deeply shaded Occoneechee Loop. It had plenty of uneven terrain for Tim so it wound up being our longest walk so far this fall.

My camera kept telling me that I needed a flash so I decided to focus on finding pockets of sunlight for my pictures. It wasn’t long before I was feeling more relaxed and mindful, noticing the individual trees and the little things. This forest bath was having a delightfully positive effect on me.

shagbark hickory
can grow over 100 ft tall and live for 350 years
sometimes we could see the sky
leaf trap
hickory leaves?
suspended pine needles and leaves
leaves on a sassafras sapling

On such October days as this, we look about us as though in some new and magic land. The mystical draws close behind the luminous veil. We see the things about us and sense larger meanings just beyond our grasp.
~ Edwin Way Teale
(Circle of the Seasons: The Journal of a Naturalist’s Year)

burl on a loblolly pine
squirrel making a quick exit
another squirrel checking me out
same squirrel taking his nut up, up, up
new growth
sunlight penetrating the deep green forest
another squirrel giving me the tail

We’re looking forward to our next walk in this wonderful forest. It will be nice to see how it changes with at least three of the seasons, as I know hot and humid summertime walks here will be few and far between.

not to be found in books

“Eye in Eye” by Edvard Munch

I was looking for a course, a way
and meaning in my life
and thought the answer could be found
in all that wise men wrote.
And they are surely not to blame
if I ended up no wiser.
That mystery so clear, so deep,
is not to be found in books.
It was in your eyes, shining, blue,
that I first saw it once.
Eternity opened a tiny crack,
And earth and heaven sang.

~ Olav H. Hauge
(The Magic of Fjords)

deepest meaning, awe-inspiring workings

“Spring Woods” by Childe Hassam

Trees in particular were mysterious and seemed to me direct embodiments of the incomprehensible meaning of life. For that reason, the woods were the places where I felt closest to its deepest meaning and to its awe-inspiring workings.
~ Carl Jung
(Memories, Dreams, Reflections)

the continuation of life

tufted titmouse by Jack Bulmer (pixabay)

The idea of the unchanging song of the birds singing in our ears as well as the ears of our ancestors conjures a potent image of the continuation of life — an inheritance so subtle that we must immerse ourselves in the sound of birdcall in order to enter into its richness. The oracular calling of birds speaks directly to our hearts, bypassing our minds; it is a mode of divination that both we and our ancestors had to learn — an unchanging language of meaning.
~ Caitlín Matthews
(The Celtic Spirit: Daily Meditations for the Turning Year)

Many years ago I saw a picture of a woman from the 1800s holding a tabby cat. It startled me that the cat looked just like a cat from our time! I sort of expected the cat to look as different as the clothing and hairstyles and furniture did back then. And when reading the above words it struck me that not only did cats and other animals look the same to my ancestors, but birds sounded the same, too. It’s a lovely connection, hearing the same tunes they did.

“Morning Glory” by Dona Gelsinger

I thoroughly enjoyed doing the above puzzle as part of my celebrating First Harvest. Something about it is so appealing I had a hard time putting it away after enjoying looking at it for a few days. I suppose the scene could be set in any time period, too.

We now have 155 confirmed cases of COVID-19 in our town. Our county (New London) has 1,433 confirmed cases. Of those 6 are still in the hospital and 103 have lost their lives. That’s 31 new cases in this county and 4 more in the hospital since the last time I looked on August 3rd. It’s ticking up again…

timelessness and quiet ecstasy

7.14.20 ~ ring-billed gull cooling his feet at Eastern Point Beach

The humidity lowered just a tad on Tuesday morning so we snuck down to the beach for an early morning walk. The only gull out and about was on the rocks, a ring-billed one with his bright yellow legs. He wanted to be friends and walk along with us.

When we went down on the sand he decided to come, too, and lead the way.

follow me, please
pardon me while I cool off my feet again

Then Tim spotted a butterfly flitting about on the wrack line!

monarch butterfly

When it moved to the sand I tried to get a shot of it with its wings open.

shadow on the sand

Yet there are other windows through which we humans can look out into the world around us, windows through which the mystics and the holy men of the East, and the founders of the great world religions, have gazed as they searched for the meaning and purpose of our life on earth, not only in the wondrous beauty of the world, but also in its darkness and ugliness. And those Masters contemplated the truths that they saw, not with their minds only but with their hearts and souls too. From those revelations came the spiritual essence of the great scripitures, the holy books, and the most beautiful mystic poems and writings. That afternoon, it had been as though an unseen hand had drawn back a curtain and, for the briefest moment, I had seen through such a window. In a flash of “outsight” I had known timelessness and quiet ecstasy, sensed a truth of which mainstream science is merely a small fraction. And I knew that the revelation would be with me for the rest of my life, imperfectly remembered yet always within. A source of strength on which I could draw when life seemed harsh or cruel or desperate.
~ Jane Goodall
(Reason for Hope: A Spiritual Journey)

nature’s delightful composition
gull tracks
song sparrow having its breakfast

I’d sit on logs like pulpits
listen to the sermon
of sparrows
and find god in Simplicity,
there amongst the dandelion
and thorn

~ Jewel
(A Night Without Armor)

wild carrot (Queen Anne’s lace)

We now have 144 confirmed cases of COVID-19 in our town. Our county (New London) has 1,345 confirmed cases. Of those 4 are still in the hospital and 102 have lost their lives. I fret over the figures coming out of North Carolina and Georgia, where my children live. Stay safe and take care…

when your friends come by

“Dear Bird” by William-Adolphe Bouguereau

Got to keep it together when your friends come by
Always checking the weather but they want to know why
Even birds of a feather find it hard to fly
~ Aimee Mann
♫ (Goose Snow Cone) ♫

Today is the 26th anniversary of my mother’s death. The pain of loss has dulled somewhat over the years, but this year is a little different because my mom was 59 when she died and I am now 60. It just feels a little unsettling… One thing I still miss terribly is calling her and telling her what was new in my life and what her grandchildren were up to. She would have found this autism thing very interesting.

When I was in nursery school my behavior was different enough to prompt my parents to take me to a child psychologist for evaluation. Autism was not understood or even heard of in the 1960s. The psychologist told them I needed more attention from them. A few years later, when I got a stomach ulcer in elementary school the doctor told them I needed more emotional support from them. How I wish I could tell them now it was not their parenting that was the problem!

Currently I am reading a wonderful book, Writers on the Spectrum: How Autism & Asperger Syndrome Have Influenced Literary Writing by Julie Brown. It’s no secret that Emily Dickinson is my favorite poet and my jaw dropped to learn that she probably had autism and one whole chapter in this book is devoted to her. I found it interesting to learn how autism made so many of her poems indecipherable, although they no doubt made perfect sense to her.

The recurring practice of quoting from someone else’s literature in your own text resembles the echolalia that people with autism are known for. Some repeat words from movies, television, or other people because they are trying to understand the meaning of the words. Sometimes echolalia is an attempt to communicate with others — the words are tools borrowed to build meaning. Some repeat phrases for the sheer joy of it.
~ Julie Brown
(Writers on the Spectrum: How Autism & Asperger Syndrome Have Influenced Literary Writing)

A couple of things struck me in the above paragraph. My autism may be what drives me to collect and share quotations! I’m not sure I completely understand the definition of “echolalia” but my mother did tell me something that I think may be related. She could always tell when I made a new friend at school because I would come home with a different accent and different mannerisms, evidently copied from various classmates. It still happens to me when I spend a lot of time with someone, although I try not to do this.

So many things are making more sense these days…

to want to know

4.21.16.katie.cropped
4.21.16 ~ Katherine ~ photo by Larisa Rodgers

I sincerely believe that for the child, and for the parent seeking to guide [her], it is not half so important to know as to feel. If facts are the seeds that later produce knowledge and wisdom, then the emotions and the impressions of the senses are the fertile soil in which the seeds must grow. The years of early childhood are the time to prepare the soil. Once the emotions have been aroused – a sense of the beautiful, the excitement of the new and the unknown, a feeling of sympathy, pity, admiration or love – then we wish for knowledge about the object of our emotional response. Once found, it has lasting meaning. It is more important to pave the way for a child to want to know than to put [her] on a diet of facts [she] is not ready to assimilate.
~ Rachel Carson
(The Sense of Wonder)