It is the month of June,
The month of leaves and roses,
When pleasant sights salute the eyes,
And pleasant scents the noses.
~ Nathaniel Parker Willis
(The Month of June)
seashore roses
June
when your friends come by
Got to keep it together when your friends come by
Always checking the weather but they want to know why
Even birds of a feather find it hard to fly
~ Aimee Mann
♫ (Goose Snow Cone) ♫
Today is the 26th anniversary of my mother’s death. The pain of loss has dulled somewhat over the years, but this year is a little different because my mom was 59 when she died and I am now 60. It just feels a little unsettling… One thing I still miss terribly is calling her and telling her what was new in my life and what her grandchildren were up to. She would have found this autism thing very interesting.
When I was in nursery school my behavior was different enough to prompt my parents to take me to a child psychologist for evaluation. Autism was not understood or even heard of in the 1960s. The psychologist told them I needed more attention from them. A few years later, when I got a stomach ulcer in elementary school the doctor told them I needed more emotional support from them. How I wish I could tell them now it was not their parenting that was the problem!
Currently I am reading a wonderful book, Writers on the Spectrum: How Autism & Asperger Syndrome Have Influenced Literary Writing by Julie Brown. It’s no secret that Emily Dickinson is my favorite poet and my jaw dropped to learn that she probably had autism and one whole chapter in this book is devoted to her. I found it interesting to learn how autism made so many of her poems indecipherable, although they no doubt made perfect sense to her.
The recurring practice of quoting from someone else’s literature in your own text resembles the echolalia that people with autism are known for. Some repeat words from movies, television, or other people because they are trying to understand the meaning of the words. Sometimes echolalia is an attempt to communicate with others — the words are tools borrowed to build meaning. Some repeat phrases for the sheer joy of it.
~ Julie Brown
(Writers on the Spectrum: How Autism & Asperger Syndrome Have Influenced Literary Writing)
A couple of things struck me in the above paragraph. My autism may be what drives me to collect and share quotations! I’m not sure I completely understand the definition of “echolalia” but my mother did tell me something that I think may be related. She could always tell when I made a new friend at school because I would come home with a different accent and different mannerisms, evidently copied from various classmates. It still happens to me when I spend a lot of time with someone, although I try not to do this.
So many things are making more sense these days…
owl prowl
photo by Timothy Rodgers
The pale stars were sliding into their places. The whispering of the leaves was almost hushed. All about them it was still and shadowy and sweet. It was that wonderful moment when, for lack of a visible horizon, the not yet darkened world seems infinitely greater — a moment when anything can happen, anything be believed in.
~ Olivia Howard Dunbar
(The Shell of Sense)
photo by Mark Musselman
South Carolina
Last night, we took a magical evening walk in the woods, an owl prowl, offered by the Denison Pequotsepos Nature Center. And something wonderful did happen! We saw and heard a family of barred owls, a mother and three fledglings!
Before the walk we listened to a lecture about the owls found in Connecticut, some common, like the barred owl, others rare, like the snowy owl. We met a little rescued screech owl who was blind in one eye. And there was a lab where we got to crack open a sterilized owl pellet and find the bones and teeth of swallowed rodents. A very informative and enchanting evening!
rapture in the lonely shore
There is a pleasure in the pathless woods,
There is rapture in the lonely shore,
There is society, where none intrudes,
By the deep sea, and music in its roar:
I love not Man the less, but Nature more,
From these our interviews, in which I steal
From all I may be, or have been before,
To mingle with the universe, and feel
What I can ne’er express, yet can not all conceal.
~ George Gordon Byron
(The Complete Works of Lord Byron)
living by voices we shall never hear
We need another and a wiser and perhaps a more mystical concept of animals. Remote from universal nature, and living by complicated artifice, man in civilization surveys the creature through the glass of his knowledge and sees thereby a feather magnified and the whole image in distortion. We patronize them for their incompleteness, for their tragic fate of having taken form so far below ourselves. And therein we err, and greatly err. For the animal shall not be measured by man. In a world older and more complete than ours they move finished and complete, gifted with extensions of the senses we have lost or never attained, living by voices we shall never hear. They are not brethren, they are not underlings; they are other nations, caught with ourselves in the net of life and time, fellow prisoners of the splendour and travail of the earth.
~ Henry Beston
(The Outermost House: A Year of Life on the Great Beach of Cape Cod)
Farewell, Auntie Lil
Last autumn we lost our aunt, who lived to be 101 years old. The various stories behind the above drawing presented a puzzle for us but after comparing memories we finally decided that the sketch was probably drawn on one of Auntie’s cruises. She kept it hanging above her bed for as long as I can remember, flanked on either side with the senior high school pictures of my sister and me.
Following is the obituary I wrote for the newspapers:
Lillian Elizabeth (Chomiak) Rioux, 101, of Storrs, Connecticut, died on October 27, 2016, at Mansfield Center for Nursing & Rehabilitation, after a short illness.
Lillian was born on January 30, 1915 in New York City, the daughter of the late William & Katherine (Fusiak) Chomiak, both immigrants from Ukraine. She married Leo Oscar Rioux on November 30, 1934 at Montville, Connecticut. Her husband died on June 5, 1957, leaving her a widow for 59 years. Lillian was predeceased by their two sons, Leo Adrian Rioux (1936-1984) and Lance William Rioux (1950-1979).
Lillian was also predeceased by six siblings, Mary Riback, Jon Stephen Chomiak, Augustine Chomiak, Augusta Jean Hereth, Olga Chomiak, and Theodore William Chomiak. She is survived by her sister, Ludmila Sabatiuk of West Virginia, her grandchildren, Leo Rioux, Jr. of Montville and Sarah James of Tennessee, seven nieces and nephews, four great-grandchildren, and a great-great-grandson.
Lil was a graduate of Norwich Free Academy and was a seamstress employed at Hendel Manufacturing Company in New London for many years. She was a long time resident of Montville and later moved to Juniper Hill Village in Storrs to live closer to her brother. An avid traveler, beach bum and shell collector, she loved to sew, cook, grow orchids, do jigsaw puzzles and work with her hands.
A memorial gathering will be planned for next spring. Memorial donations can be made to Mansfield Town Senior Center, 303 Maple Rd, Storrs, CT 06268.
We had our memorial gathering for her on May 6, spreading her ashes on the graves of her parents and her husband and two sons, as she had directed. My Aunt Em read to us her memories of Aunt Lil’s earlier years.
Every year on Memorial Day, my father would drive Aunt Lil to these two adjacent cemeteries, so she could plant geraniums in front of the headstones, each one a different shade of red or pink. When my father could no longer drive, my sister and brother-in-law stepped in to take her. As he has been doing for years now, John once again planted the geraniums that meant so much to her, this time with family spreading ashes and telling stories.
The story Auntie told me was that it was not permitted for her to be buried in the Catholic cemetery with her husband and sons because she never converted to Catholicism. But she married a Catholic and had her sons baptized in the church. It was her wish to join them in the cemetery by spreading her ashes on their graves.
At the last grave Tim read a poem my sister Beverly wrote in memory of Auntie for the occasion.
They were worker’s hands, never soft, never still.
It took me fifty years to catch them, hold them, keep them safe and warm.
A thousand times I watched them go:
knit and purl
peel and chop
turn the pages
stir the pot.
If hands could talk what would they say?
It took me fifty years to hear them, know them, find out how they spoke.
A thousand times I felt their love:
show and tell
hug and pat
acts of kindness
pet the cat.
I’d come to love her knobby hands
that always showed me what to do.
How those hands have touched my life!
They’ve one more job before they’re through:
stitch and mend
my broken heart.
~ Beverly Chomiak
(Her Hands)
Then we all went to eat at one of her favorite restaurants, Old Tymes in Norwich, finishing the meal with dishes of Auntie’s favorite black raspberry ice cream. ❤
namesake
She’s too little to understand just yet but I think she recognized her name, the one she shares with her great-great-grandmother, Katherine. We were at the cemetery to spread some of my aunt’s ashes on her parents’ grave, as she had wished us to do. Will share some things from the memorial we had for my Aunt Lil soon…
impaired executive function
Most people on the spectrum have some level of executive function impairment, but how that impairment impacts our lives can vary greatly from person to person.
~ Cynthia Kim
(Nerdy, Shy, and Socially Inappropriate)
The most fascinating aspect of autism that I have encountered so far is the idea of impaired executive function. It’s not something that usually gets listed with other features of autism and I had no idea what “executive functioning” could possibly mean.
Executive function is a broad term that refers to the cognitive processes that help us regulate, control, and manage our thoughts and actions. It includes planning, working memory, attention, problem solving, verbal reasoning, inhibition, cognitive flexibility, initiation of actions, and monitoring of actions.
~ Cynthia Kim
(Nerdy, Shy, and Socially Inappropriate)
I have trouble with all these things! I’ve long considered myself to be inept, clumsy, absent-minded and inflexible — to think how long I’ve desperately tried to force myself to be flexible and easy-going. Even my children tried not to spring things on me, not wanting mom to get hopelessly flustered.
It’s difficult for me to finish a chore if it has too many steps. Sometimes I have to write down each and every step if I want to have any hope of getting the job done. Lists are my friends, I think.
Driving is overwhelming because there are too many things going on to pay attention to. I use my left foot for the brake because the right foot is for the gas pedal. One foot can’t seem to handle two different assignments. When I finally got my driver’s license at the age of 21 the person who tested me decided to pass me if I promised to work on using the one foot for both pedals. He said if I used both feet I would get mixed up and push the wrong pedal sometimes. Now I am glad I didn’t listen to him because I have never gotten the pedals mixed up doing it my way. Now I know why — my brain works a little differently.
I also have many difficulties with problem solving. Often it just doesn’t occur to me that doing something a bit differently would be faster or more effective. And very often I don’t even recognize a problem until someone points it out to me. (I do appreciate the helpful hints, by the way, humble being that I am.) And sometimes when trying to do something familiar in a new setting or at a different time or with different people I simply freeze. In fact freeze is my automatic response when faced with the anxiety of a fight-flight-freeze situation.
When I was a child we often went to visit my widowed aunt who needed my parents’ help with home maintenance and yard work. She always had a stack of gift catalogs — like Harriet Carter, Lillian Vernon, Carol Wright, Miles Kimball — but I called them problem-solving catalogs. My parents never had these fascinating resources! While Auntie was cooking a Sunday dinner I used to study them carefully, amazed at all the clever gadgets people invented to solve problems I never imagined existed!
Something more recent now… I have two tall bookcases with glass doors that I need to move to finish painting the living/dining room. I wanted someone to help me by standing on the floor while I stood on a chair and emptied the top shelf, handing them the items to put on the table. I wanted to do it this way because I didn’t want to have to keep getting up on and down off the chair. That’s pretty much how I always tackled the problem but when I was younger there was always a child available to help me out.
Then one night about a week ago I was sitting on the couch looking at them and it suddenly occurred to me that I could take things off a lower shelf and then move the things off the top shelf onto the lower shelf while still standing on the chair. I was amazed at my sudden and unfamiliar brilliance! Why didn’t I think of this years ago?
What is unusual here is that I figured this one out by myself. To do things my way is usually tedious at best. Most of the shortcuts I’ve learned over the years for doing housework have come from how-to books or from friends and relatives pointing things out to me. I still remember how enlightened I felt when my aunt told me about felt circles I could stick to the bottom of the kitchen chairs to muffle the loud noise they made when moved across the floor. Who knew?
Frustratingly, an executive function deficit is not something you can fix by simply trying harder. Often, other people will look at the symptoms of impaired executive function and assume the autistic person is lazy, spaced out, or disorganized. If only they would make more effort, everything could be fixed. In fact, I think most autistic people — including me — think this of themselves at times.
~ Cynthia Kim
(Nerdy, Shy, and Socially Inappropriate)