How do you explain to the people around you that what you need now is to just crash and do nothing for a while until your head feels normal again, when you don’t even know what’s wrong with yourself? … I think it’s important to keep in mind that when we define the severity of a person’s Autism, it’s only a measure of outward behavior and doesn’t really reflect how much one is affected by the condition internally. Those of us who appear to have low severity may actually need more than is apparent to the eye. … Sometimes I think of myself as part of a lost generation (or generations), the ones who had to go through life with Asperger’s unknowingly. And I’m hoping that in the future, with better education and understanding, the Aspie youth of the future will have a completely different experience. … It’s a nice feeling — a relief — to finally find an explanation for all the confusion and difficulties in your life, but it would have been even nicer to have known it all along.
~ Michelle Vines
(Asperger’s on the Inside)
Yesterday I spent the day reading and then shredding all the journals I wrote when I was in my late 20s and early 30s. (I’m in my early 60s now.) Something I’ve been meaning to do for a few years because there was a lot of very personal stuff in there.
What was strikingly revealed to me as I read is the painful struggle I was having with autism for years, trying desperately to figure out what was “wrong” with me. The evidence of impaired executive functioning jumped out at me on almost every page, so obvious from what I know now, so baffling back then. I wanted so badly to live like a “normal” (neurotypical) person, to figure out how to get along in this world.
As I read I kept saying under my breath, “no wonder you were so damn tired all the time.” It’s exhausting trying to make your brain work with a different operating system. I can’t help wondering what my life might have been like had I and my parents and my husband known about autism and if I had had some meaningful support. But it IS a huge relief to have it all make sense now.